Questions to ask

QUESTIONS TO ASK YOUR HEALTHCARE PROFESSIONAL

Use this question builder to help you get the most from sessions with your healthcare professional:

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SBS-IF

How often should I see you?

What team of specialists will be managing me?

Can SBS-IF improve over time?

Can I eat or drink with SBS-IF?

Will I retain my appetite?

Will my bowel movements be normal?

Can eating nothing harm the remaining bowel I have left?

What hygiene precautions do I need to take?

Does SBS-IF affect the immune system?

SYMPTOMS

What symptoms does SBS-IF cause?

Are there any activities that can help to reduce my symptoms?

Is it normal to feel extremely tired?

Is there anything to help me sleep better?

What should I do if I get a fever (high temperature)?

Will my weight fluctuate a lot?

TREATMENT

What are the treatment options for SBS-IF?

What are the goals of my treatment?

Is it possible to eat and drink while on parenteral support?

Will I be able to wean off completely from parenteral support?

What complications should I be aware with the use of parenteral support?

What should I do when my stoma leaks?

How can I keep my catheter safe?

What can I do to reduce the risk of complications associated with parenteral support?

Are there any alternative treatments to parenteral support?

Can intestinal transplantation cure SBS-IF?

Will I be able to take medications for my other illnesses in the same way?

Can taking too much medication affect my health?

What should I do if I forget to take my medication?

How often will I need to do blood tests?

LIFESTYLE

What effect will parenteral support have on my lifestyle?

Can I still drive with SBS-IF?

Will I be able to work again?

Will I be able to complete my studies with SBS-IF?

Can I play sport with SBS-IF?

Is it possible to travel while on parenteral support?

Can I go on holiday?

What things should I consider prior to travelling?

Can I shower or take a bath?

How can I prepare for an event that I want to attend?

How can I communicate what SBS-IF is to my family?

OTHER

What patients support groups can I join?

Are there any useful patient-friendly educational resources you can recommend?

Is there a way to get in touch with other SBS-IF patients?

Are you able to provide any advice to my husband/wife/partner/carer who will be supporting me?

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Date of preparation: April 2020 C-ANPROM/INT//7389

QUESTIONS TO ASK YOUR HEALTHCARE PROFESSIONAL

Use this question builder to help you get the most from sessions with your healthcare professional:

CHOOSE YOUR QUESTIONS

REVIEW YOUR QUESTIONS

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